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Twirling Naked in the Streets and No One Noticed: Growing Up With Undiagnosed Autism

por Jeannie Davide-Rivera

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Jeannie grew up with autism, but no one around her knew it. Twirling Naked in the Streets will take you on a journey into the mind of a child on the autism spectrum; a child who grows into an adolescent, an adult, and becomes a wife, mother, student, and writer with autism. This is a gripping memoir of a quirky, weird, but gifted child who grows up never quite finding her niche. It took 38 years to discover that all the issues, problems, and weirdness she experienced were because she had Asperger's Syndrome (AS), a form of high-functioning autism.The tale begins at age three and takes us all the way through her diagnosis. Along the way she explains autism in a way that will have fellow "Aspies" crying tears of joy at being understood, and "neuro-typical" people really starting to grasp the challenges that autistic people face every moment of every day.… (mais)
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This is a book by a woman whose autism was undiagnosed as a child.

It provides us with many details of her symptoms/life as a child, teenager and now as an adult. It is very readable, and having Asperger’s myself, I recognize many of her symptoms; also, the book shines light on many of the symptoms which I didn’t previously realize had anything to do with autism; for example, the need to finish one activity before proceeding to another; I still have this problem.

When I was five, we had to spend one day in another, bigger school where my Dad taught; the teacher asked me to fill a page in cursive with the sentence “A stitch in time saves nine”. I was so happy to do this, but before I had completed the page she took it from me because she wanted me to do something else. This was most disturbing for me because I wasn’t finished! I hadn’t been allowed to do it properly.

The author, Jeannie, is given one diagnosis after the other, none of which has anything to do with autism. At one point, she has to take anti-depressants, anti-anxiety medications, muscle relaxers and pain killers three times a day, which means that she can hardly keep her eyes open; thus she is given medication to wake up in the morning and some to help her sleep because of it. She is “a walking pharmacy”.

From an early age she consumed books. She had hypolexia (a new word for me); this is an ability to read above what is expected for the child’s age, “accompanied by a below average ability to comprehend spoken language”. (I had the first, but not the second, to my knowledge.)

Autistic persons are extra sensitive. Thanks to this book I now understand why I found woollen clothing so scratchy as a child and couldn’t wear it. I once hid a woollen undervest in the bathroom behind what was called the “boiler” so my mother couldn’t find it and force me to wear it. She couldn’t understand what had happened to it. It is probably still there unless the old house has by now been demolished, which is very possible.

To get back to Jeannie, luckily she had a Grandma who understood her sensitivities and bought her clothing she could wear, so “there would be no itching, no scratching, no tearing it off my body, and no tags!”

Jeannie could not tolerate mistakes. Everything had to be perfect. The problem was she could not distinguish between her way to do things and the right way. She thought that her way was always the right way.

Arranging things, bringing order out of chaos was the most important part of playing and brought Jeannie the most joy.

She can’t eat food that is wet or on a wet plate, or anything slimy, which causes her to vomit.

She eats the same things at the same time, day in and day out.

When she was four years old she was totally obsessed with baseball. She knew everything about it and all the players.

She was verbal, too verbal. She was smart, “too smart for her own good”. (This is thus the opposite of what formerly was acknowledged as the main symptom of autism – an inability to speak.)

She smells things no-one else can, even a faint remnant of odour in the air. Growing up, she had to smell all her food before eating it. The more anxious she was, the more things she sniffed.

Homework took time, because her writing had to be perfect. She walked back and forth while doing her homework in order to concentrate.

She tells us “My autistic brain is stubborn, unyielding and immovable”.

She could not tolerate more than one friend at a time – ever. She found groups overwhelming – tell me about it!

She writes: “I am an all-the-way, all-the-time friend, or nothing at all.”

She couldn’t grasp peer pressure – “doing things you knew were wrong just to fit in, or things you didn’t want to do to keep your friends”. (Ha, ha, me neither.)

Social niceties were unacceptable behaviour. “Lying just to make someone feel good was not acceptable to me.”

I can’t lie either, in fact, at the age of three I had a traumatic experience when I realized that there were such things as lies. Why would everybody not always tell the truth? It was terrible that someone thought I was lying when I couldn’t even comprehend the fact that lies/lying existed.

Some so-called experts think that autistic persons do not empathize. That is rubbish. “We care: we feel, we hurt, but sometimes we cannot show it no matter how much we want to”.

Jeanne explains the meaning of mind-blind. The mind-blind person does not pick up on social cues, vocal intonations or facial expressions”. ”Whatever pops into the brain usually flies out of the mouth, making the autistic person extremely blunt, sometimes appearing rude”.

This is a useful book for other autistic persons and for those wishing to understand autism, though the author’s symptoms and experiences will not necessarily resemble those of everyone with autism.

I found the book extremely interesting and would have given it five stars had it not been for the many grammatical mistakes, typos and the like. These were irritating and I find it strange that these should occur in a book by a perfectionist such as the author describes herself to be. But otherwise it is well worth reading. ( )
  IonaS | Apr 23, 2020 |
The candid and heartfelt memoir of a woman who struggled with undiagnosed ASD, autism spectrum disorder, for almost 40 years. I think this will strike a chord with most autism parents and family members, maybe even some caregivers and educators. How many of us have recognized ourselves, a sibling or even a parent/grandparent in the diagnostic criteria and finally gained insight into behaviors and sensory issues that had been an unexplained source of frustration? I'm very grateful that Jeannie shared her story. ( )
  wandaly | Jun 30, 2016 |

Twirling Naked in the Streets is an autobiography about growing up as a girl with undiagnosed autism.

The story unfolds in a straightforward manner that makes it easy to follow along and relate to the ways the young girl's quirks, hypersensitivities and presumed princess manners cause social friction, bewilderment and hostility in her near surroundings.

It is a lonely story, a path of misunderstandings and mysterious dysfunctions into an ever more complicated adult world where the alienation seems to grow with every anticipated and missed milestone, up till the ‘moment of truth’ where Jeannie's diagnosis, emerging self insight and discovery of online communities of fellow aspies gives her the explanation she was looking for.

Despite the gloomy plot, the story isn’t a heavy read - it is vivid, humorous and entertaining to read, and the simple, matter-of-fact like observations of Jeannie’s fellow characters make them easy to imagine and relate to.

What I liked most about the book is how it shows ways autism symptoms can present in girls and women who may otherwise not come across as stereotypically autistic. Jeannie is a girl who talks well (and a lot). Who has friends at least some of the time. Who goes out (drowning the sensory overload with alcohol), studies (albeit interrupted), lands jobs, and initially comes across as socially capable at job interviews (although she can’t hold onto the jobs). She also gets married and have kids.

In other words, from an outsider’s perspective her life may seem fairly normal, but in reality her autism pervades all spheres of her life, draining her energy and limiting her capacity to meet the standards of a so called normal life / womanhood.

Great book!
( )
  Saltvand | Nov 16, 2014 |
Jeannie grew up with autism, but no one around her knew it. Twirling Naked in the Streets will take you on a journey into the mind of a child on the autism spectrum; a child who grows into an adolescent, an adult, and becomes a wife, mother, student, and writer with autism.

An autobiography that is well-organized, well-crafted, filled with honest gut wrenching drama, and reads like a good mystery. This wonderfully written book will stay with me for a very long time. One of the most real, heart wrenching stories.

I loved the way this story made you see life through Jeannie's eyes. Very moving and emotional. I would love to see a sequel. Witty, sarcastic, and heartfelt, Jeannie’s words shine with personality and intellect, her strength and determination adding sparkle and hope.

As a reader, I think this book is enlightening and inspiring. I am grateful for Jeannie opening her life and her struggle for the general public to learn and to witness. Thank you Jeannie for sharing what you have endured, and allowing some of us to be able to take what you have learned to be able to apply it to our own lives.

Reading this story, hearing words from this young woman is inspiring. I wish that every single person In The world could read this and be more aware of autism and the wonderful people who suffer from it, I feel like I know Jeannie and her family, and I will share her words and hope with all I know. ( )
  MaryAnn12 | May 24, 2013 |
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The Kindle Book Review received a free copy of this book in exchange for a fair and honest review.

This is a compelling memoir by Jeannie Davide-Rivera telling her story about growing up with undiagnosed Aspergers, which is a form of high functioning autism. As an adult, she finally got a diagnosis that pretty much explained her entire life in a nutshell. When my son was diagnosed at age three and I started learning all I could about autism, I was astounded-not at his diagnosis, but at the realization that I had it, too. I have never been diagnosed, but don't feel I need it at this point. Jeannie and I could've been identical counterparts in parallel universes. The stories she tells are mine. Her feelings are mine. Her experiences are mine.

I think that usually when other people, even experts, encounter autistic people, figuring them out is like staring backwards through the peephole of a locked door. But here we have an actual autistic person telling what it's like from the inside. That kind of empathy and understanding is the best gift the parent of a child with autism can give that child.
This book was very well and logically done by a woman who is intelligent and articulate. I'm recommending this book to everyone I know who might be I involved, even peripherally, with autism.

adicionada por j.davide.rivera | editarKindle Book Review, Jane McBride
 
Jeannie Davide-Rivera shares her story of growing up with undiagnosed Autism in “Twirling Naked in the Streets and No One Noticed: Growing Up With Undiagnosed Autsm.” In the introduction Jeannie shares the statistics of Autism. “In 1974, 1 in 5,000 children were diagnosed with Autism…In 2013…1 in 55 children are now diagnosed and identified as being on the autism spectrum.” She continues to describe her imaginary friends: ten puppies and 3 baseball players. Though she was only three at the time she was focused to the point of obsession on baseball. She refused to leave home without her imaginary friends in their assigned places. There were many other symptoms such as obsessively walking on her toes, insisting on a routine of her own and being hyper-sensitive to fabrics. No one understood what was going on with Jeannie; her mother assumed she was being difficult. Her father would knock food out of her hand if he caught her smelling of it. In the seventh grade Jeannie wore her coat in class because she was ill and having chills. The teacher “grabbed a fist full of my hair to pull me from the desk.” Jeannie in return grabbed a fist full of the teacher’s hair. In high school she attended an alternative school which seemed to be the best choice for her.

My heart goes out to the author, Jeannie Davide-Rivera; her Autism caused her parents to be angry and frustrated. Perhaps if her parents had recognized the disorder they would have been able to cope in a more appropriate manner. However, the reality of her childhood was abuse. I admire the person Jeannie has become despite the obstacles that have stood in her way. “… an autistic person must think about and focus consciously to perceive what comes naturally to others.” The author courageously shares the pain of her childhood and adulthood. At one point Jeannie uses the word 'disconnected'. I believe that word best describes Autism. Like most of us, knowing there really is a problem, that it isn’t just our imagination, made a difference in Jeannie’s life. I highly recommend this book to others.
 
Suffering from autism, Jeannie is an intelligent child who cannot comprehend the context of words, nor their meanings and social implications. This is in 1974 when awareness of autism and other mental conditions are not as high as today. Her family thinks she is a stubborn, picky, hyper-sensitive little girl with plenty of imaginary friends. She attends school, studies ballet and exhibits a number of strange behaviors that are simply explained away. In middle school, she thinks nobody understands her. Excelling in academics, she struggle through life as a college student at the John Jay College of Criminal Justice. After this, she becomes a bank teller, cashier, waitress, bartender, lab assistant, undercover investigator, emergency medical technician, secretary, dance instructor, medical transcriptionist, correctional officer, and a writer. Simply unable to keep a job, the 23 year old Jeannie gets married and have children. She floats in life, feeling alone and without purpose, looking for some kind of explanation. This is her struggle, her life.

Life is hard enough without being autistic and "Twirling Naked in the Street and No One Noticed" is the story of the struggles of an autistic woman. In addition, she goes through life and nobody around her knows it. As soon as I started reading the first few pages of this memoir, I could almost see the author as a little girl with her imaginary friends. I like it that she is using the first person perspective because it provides the story an intimate feel. This narrative gives us an idea of how an autistic mind sees and reacts to life's challenges. Recounting her life from childhood to motherhood and beyond, Jeannie Davide-Rivera literally bares her soul to her readers. This is perhaps in the hope that her readers may get to understand anyone suffering from Asperger's Syndrome, a form of high functioning autism. The author's descriptive style is simple and straightforward and is quite effective in making the story vivid and real. I also like the titles of the book's twenty three chapters because most of them exhibit a sense of humor that is heartwarming. I highly recommend this book to everyone, not only to understand people with autism, but also because Jeannie Davide-Rivera is a gifted story teller.
 
Reviewed by Robert Rose for Readers' Favorite

Jeannie Davide-Rivera spent most of her 38 years alone in her mind. Her insensitivity to others’ thoughts, feelings, and actions kept her from making meaningful emotional connections. One grandmother was an exception. She understood one aspect of her hyper-sensitivity. She took her to the yarn store and let her pick out - by smell and touch - the fabrics that she used to make her clothes. Otherwise, as the title suggests, she’d wear only her birthday suit. This was one of the ways her sensory system reacted badly to what was ‘normal' to others. At school the sounds and sights that others found helpful in learning were, to Jeannie, chaotic and confusing. Being sent out to sit in the hall was a relief to her and she could read and do her schoolwork in peace. She had taught herself to read at age 4. Her hyper-memory made it easy for her to be an “A” student in any type of academic setting. She managed to get through junior high despite her hypo sensitivity to others, but her high school days were spent anywhere except in school. She probably went to class for a total of one year. Yet at 17 she passed the GED, missing only 3 questions and made 1400 on the SAT. Like many who are seen as “different” she followed her own path without regard what others thought. She was attractive so she used men as well as they used her. She pursued her husband and he deserves a medal because beside her autism, they have 3 sons with varying degrees of it. They together read widely and 'discovered' her autism.

Jeannie has written an autobiography that is well-organized, well-crafted, filled with honest gut wrenching drama, and reads like a good mystery. It shows the glaring problems of our health delivery system. It demonstrates the problems of inattention (not listening to patients) of health professionals, their tendency to jump to quick conclusions based on inadequate information (misdiagnosis), and to prescribe treatments and drugs that often don’t work or make the patient worse (patients’ and drug companies’ pressure on doctors.). These are compounded by our education system's inability or refusal to teach each individual how his complex body and mind works and how these functions affect himself and others. "Twirling Naked in the Streets and No One Noticed" is a book that could be life changing for anyone with any medical condition and for all of us who will face some or be the caregivers of those afflicted. Thanks, Jeannie.
 
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Jeannie grew up with autism, but no one around her knew it. Twirling Naked in the Streets will take you on a journey into the mind of a child on the autism spectrum; a child who grows into an adolescent, an adult, and becomes a wife, mother, student, and writer with autism. This is a gripping memoir of a quirky, weird, but gifted child who grows up never quite finding her niche. It took 38 years to discover that all the issues, problems, and weirdness she experienced were because she had Asperger's Syndrome (AS), a form of high-functioning autism.The tale begins at age three and takes us all the way through her diagnosis. Along the way she explains autism in a way that will have fellow "Aspies" crying tears of joy at being understood, and "neuro-typical" people really starting to grasp the challenges that autistic people face every moment of every day.

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