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Resurrection Lily: The BRCA Gene, Hereditary…
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Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers… (edição 2018)

por Amy Byer Shainman (Autor)

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276706,712 (4.14)Nenhum(a)
Resurrection Lily shares a story of inheritance and intuition, of what can surface in the body and the spirit when linked by DNA. As Amy Byer Shainman discovers she has inherited a BRCA gene mutation that puts her at high risk of developing  certain cancers, she struggles to come to terms with preventively removing her breasts when she does not have a breast cancer diagnosis. Through her experience making decisions about her health, Amy becomes invigorated with purpose and establishes herself as a leading advocate for those with BRCA and other hereditary cancer syndromes, tirelessly working to educate others facing the same daunting reality.   Painting a timely and moving portrait of what it feels like to carry a BRCA gene mutation, Resurrection Lily provides firsthand insight into the patient experience. Weaved throughout Amy's open and vulnerable story is the expertise of her doctors, education from top medical experts in cancer genetics, and whispered lifesaving guidance from her grandmother Lillian.… (mais)
Membro:HollyDix
Título:Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew: A Memoir
Autores:Amy Byer Shainman (Autor)
Informação:Archway Publishing (2018), 316 pages
Colecções:Lista de desejos
Avaliação:*****
Etiquetas:Nenhum(a)

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Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew: A Memoir por Amy Byer Shainman

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Mostrando 1-5 de 6 (seguinte | mostrar todos)
I received this book for free right here on LibraryThing. It is truly a must read for all woman. It is packed with emotion along with extensive research. I have already recommended this book to all of my close female family and friends. As a librarian I will be recommending it to my local book groups as I sincerely believe it should be on every book groups to-read list. I was pleasantly surprised to also receive a face mask that matches the cover of the book. It is beautiful and has sparked many conversations about the book each time I wear it. All while promoting the cause at the same time. I can't speak highly enough of this book, it is absolutely my favorite book i've read all year so far! ( )
1 vote HollyDix | Nov 5, 2020 |
In this book, Amy Byer Shainman has approached the topic of the BRCA gene and breast cancer from a personal angle. She tells the story of friends and relatives who have battled the disease. But she also details her own story of taking preventative measures when she discovers she has the BRCA gene.

This book may seem to have too much information and details for the casual reader. However, for someone who has recently been diagnosed (or loves a person who has), this book will be a valuable resource. ( )
1 vote AuntPaige | Oct 29, 2020 |
Reviewed by Paige Lovitt for Reader Views (9/19)

When Amy Byer Shainman learned that she carries the BRCA 1 gene mutation, which puts her at risk for breast and other deadly cancers, she chose to be proactive about reducing her risks. She made a difficult but educated decision to have a prophylactic bilateral mastectomy and have both her ovaries removed. Shainman educates family members, friends and readers about what is involved with this process by sharing her story in “Resurrection Lily.” She also provides a great deal of information about the genetics involved with the BRCA mutations. It is important to note that both men and women need to be aware of the diseases that can develop from inheriting these mutations. As Shainman did her own research, she discovered that she had several family members that had been affected by this, including her father’s mother Lillian who died young. Lillian’s story is shared and heard in this book.

While I found myself getting caught up in Shainman’s personal story, especially about people around her that suffered huge losses from this hereditary issue, I also learned a great deal about the process that one should take if they have inherited the BRCA mutations. These steps include how to research board certified genetic counselors and surgeons for both mastectomies and reconstruction. She also stresses the importance of following up with specific tests to make sure that cancer has not occurred. It was scary to learn that there is no definitive test for ovary cancer.

The medical information is very easy to understand. Readers will not need a medical degree to grasp the information presented. In addition to information being presented for the person who has a BRCA mutation, readers who want to help those going through either the preventive process or those with cancer will benefit greatly from gaining a greater understanding about what their loved one needs help with when having to go through the processes involved. This information made me feel much more empowered because I truly want to be there to help my friends.

I highly recommend that both women and men read “Resurrection Lily.” The amount of knowledge and access to resources is priceless. I am truly grateful that Amy Byer Shainman shared her story so that readers can pass this information on. Lives will be saved. ( )
1 vote Reader_Views | Oct 20, 2020 |
This was an ok book. The parts were ok, but the organization was...strange and I couldn't really get into it. It was not a particularly memorable book. I started it 3 times before I got past the first chapter, and frequenly other even non-fiction titles got more attention than this one. The only thing I felt when I finally finished was "Oh thank god I'm done". I liked individual bits but most of them weren't really enough to make up for the rest of it.

I do wish it was better. Breast cancer is kind of a scary topic and it doesn't get a lot of specific coverage. ( )
  m_mozeleski | Aug 22, 2020 |
I have had to put down this book a multitude of times. Since I have gotten to page 100, it has been easier to read and stay engaged with.

While there is a decent amount of information, information I did not have before reading this book, I do believe it could have been better streamlined. She covered things she wished she had known prior to getting some of her surgeries and gave helpful suggestions for questions or things to look into for others. There’s even a resource guide and informational statistics located in the back of the book. It’s very apparent that she is passionate about the topic and wanting others to know and be informed about BRCA.

The reason it’s been hard to stay fully engaged with this memoir is it’s rather joltingly put together. There are three different font types found within the book. When the author is narrating, emails, and quotes from other people. Frequently there is more than one font type on the page. This breaks up the passage and draws the reader out of the book. At times it got frustrating for me to keep getting thrown off by this. Furthermore, the author seems to repeat herself on a few plot points, more than once. This just adds unnecessary passages to the book and it’s just repetition that is not needed.

Another drawback is the fact there are so many quotes shoved in here. Not all of them are necessary or add to the narrative. When there is one on pretty much every page or every other page, it gets to be a bit too much. It makes it less of a memoir and more of a half memoir, half other people’s quotes on a subject. Some quotes are useful, truly they are. Others…not so much.

While the author is insightful to the BRCA gene and hereditary cancer, there are a few times where her ignorance shows. One such time is when she is talking about resigning to the fact she can’t have anymore kids. As someone who is adopted, I found this a bit insulting. Adoption is a viable option. Just because you personally are unable to birth kids doesn’t mean you can’t have more. They just might not be genetically yours.

There are a few graphs and photos of her medical paperwork in the story, however, not all of them were really legible. I couldn’t really make out what was said in a few of them and thus, just kind of glossed over them. I wish they would have been larger and/or clearer for the reader’s benefit.

TL;DR I believe the author had the best of intentions while writing this book. It is certainly informative and you can feel the writer’s passion in the words she writes. I just feel like the writing could have been streamlined a little better and some unnecessary quotes taken out to make it more digestible for the reader.

(*Note I received this book in exchange for an honest review from either GoodReads Giveaways or LibraryThing's Giveaways. I honestly can't remember which site.) ( )
  carissaburks | Jul 7, 2020 |
Mostrando 1-5 de 6 (seguinte | mostrar todos)
"A book about illness is a precarious thing, and cancer is possibly the most difficult to approach. However, Shainman maneuvers through this topic with ease, tact, and an emphasis on education and motivation...Shainman writes with honesty, sensitivity, and vulnerability."
 
"A moving, informative, and powerful memoir, Resurrection Lily is highly recommended for its combination of practical tools and poignant honesty."
adicionada por BRCAresponder | editarSPReview (Mar 18, 2020)
 
"Readers facing breast cancer or who have newly learned that they carry the BRCA gene mutation, will be inspired and moved by this account."
adicionada por BRCAresponder | editarBooklife by Publishers Weekly (Jan 17, 2020)
 
"More than a memoir, it is an essential resource for women concerned about breast cancer and all that it entails, both before and after a diagnosis. Sources and resources listed at the end of the book provide vital help to those seeking further information."
 
"A deeply intimate story of personal discovery, I recommend this book for anyone looking to find out more information about hereditary cancer and the Ashkenazi population. Readers will also find the additional resources and charts useful. This book is appropriate for a public library, but it is an especially important resource for synagogue libraries to have in their collections as well."
 
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Resurrection Lily shares a story of inheritance and intuition, of what can surface in the body and the spirit when linked by DNA. As Amy Byer Shainman discovers she has inherited a BRCA gene mutation that puts her at high risk of developing  certain cancers, she struggles to come to terms with preventively removing her breasts when she does not have a breast cancer diagnosis. Through her experience making decisions about her health, Amy becomes invigorated with purpose and establishes herself as a leading advocate for those with BRCA and other hereditary cancer syndromes, tirelessly working to educate others facing the same daunting reality.   Painting a timely and moving portrait of what it feels like to carry a BRCA gene mutation, Resurrection Lily provides firsthand insight into the patient experience. Weaved throughout Amy's open and vulnerable story is the expertise of her doctors, education from top medical experts in cancer genetics, and whispered lifesaving guidance from her grandmother Lillian.

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