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Hidden Valley Road: Inside the Mind of an…
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Hidden Valley Road: Inside the Mind of an American Family (original 2020; edição 2020)

por Robert Kolker (Autor)

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6183528,138 (4.15)30
"Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shockingviolence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after the other, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institutes of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother, to the search for genetic markers for the disease, always amidst profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love and hope"--… (mais)
Membro:elliestripp
Título:Hidden Valley Road: Inside the Mind of an American Family
Autores:Robert Kolker (Autor)
Informação:Doubleday (2020), Edition: Illustrated, 400 pages
Colecções:A sua biblioteca
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Hidden Valley Road: Inside the Mind of an American Family por Robert Kolker (2020)

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Mostrando 1-5 de 34 (seguinte | mostrar todos)
A very interesting true story that at times made me gasp. It is not a light read by any means but learned a lot about this awful condition that still is a mystery to medicine. It took the bright futures of these boys and wrecked their lives and the lives of so many others. ( )
  clamato | Feb 4, 2021 |
This riveting read is a deep dive into the history and science of schizophrenia, delivered largely as a biography of a Colorado family where 6 of the 12 midcentury-born children have been diagnosed. It’s a harrowing story of chaos, violence and denial, with a poignant closure that I was going to characterize as resilience, but really it’s more like endurance. ( )
  DetailMuse | Feb 2, 2021 |
(6) This is a heartbreaking story of a post-War American family - typical American story in many ways - military, Catholic, middle class, lots of kids (12 to be exact), stay-at-home yet educated mother. The tragedy comes as we learn that ultimately 6 of the boys in the family have a psychotic break and are ultimately diagnosed with schizophrenia. So through the generosity and frankness of the Galvan family the reader comes to know the devastating effects of mental illness on a family.

It is such a cruel disease: striking in the prime of people's lives and stealing them - in a way almost worse than death. The way it derailed those boys one by one . . . the devastation and the fear the parents and other siblings must have felt. Interspersed with the Galvan family story, there are chapters about the state of the science surrounding the disease - from the idea that its the fault of a controlling mother, to genomics and the promise (not yet realized) of novel targeted pharmaceuticals.. These chapters, in some respects, went too far into the weeds (e.g. towards the end lots of focus on minutiae gene research that went nowhere) and in some respects, not far enough (eg. I really don't recall an actual definition of schizophrenia and exploration of the "typical" case) If not for the poignant word-for-word dialogue the author includes from conversations with the adult affected Galvan boys, I am not sure a coherent picture of the disease would emerge for the reader. Maybe that is intentional by the author - but from a medical perspective; schizophrenia is quite strikingly recognizable and can be defined/described.

In summary, the book is affecting and will stick with me. I do think it started much better than it ended and the last third or so seemed a bit more dispiritedly written - but overall - what a tragic story. I am impressed with the honesty and the access the family gave to the author. I am so sorry for all that happened to them and applaud the youngest daughter especially for recognizing the humanity left in her sick brothers and sticking with them along with her mother. There was a part at the end that haunted me the most about the loneliness of the sick brothers. The brothers locked in their delusions and their medicated fog became inaccessible to others - but "the mistake is to confuse inaccessibility with loss of self." ( )
  jhowell | Jan 30, 2021 |
Oh dear god.
Overall, this is a book about perseverance. And living hell. One family-12 kids- 6 of the boys diagnosed with schizophrenia. Kolker successfully gave each family member a personality with warmth, confusion, hope and despair.
No one can write a simple synopsis for HIDDEN VALLEY, there are simply too many swirling emotions mixed with the reality of 'what is'.
( i gave myself a headache attempting to put myself in the deluded shoes of the mother..... ) ( )
  linda.marsheells | Jan 20, 2021 |
Extensively researched, well-written book about severe mental illness and abuse in a family with 12 children. Includes a lot of information about medical research related to schizophrenia. Harrowing and tragic, but it provides an honest view into the life of this family ( )
  KatyBee | Jan 14, 2021 |
Mostrando 1-5 de 34 (seguinte | mostrar todos)
Kolker’s telling of the Galvin trials is at once deeply compassionate and chilling. ... Interwoven with the harrowing familial story is the history of how the science on schizophrenia has fitfully evolved, from the eras of institutionalization and shock therapy, to the profound disagreements about the cause and origins of the illness, to the search for genetic markers for the disease.
adicionada por Lemeritus | editarWashington Post, Karen Iris Tucker (sítio Web pago) (Apr 9, 2020)
 
Kolker carefully reconstructs the story of the household falling into bedlam as the strong, athletic brothers warred with their demons and one another in flights of violent rage, each one slipping further away. ... Kolker is a restrained and unshowy writer who is able to effectively set a mood. As the walls begin closing in for the Galvins, he subtly recreates their feeling of claustrophobia, erasing the outside world that has offered so little help.
adicionada por Lemeritus | editarThe New York Times, Sam Dolnick (sítio Web pago) (Apr 3, 2020)
 
Hidden Valley Road blends two stories in alternating chapters. The first is about the overwhelmed Galvin parents, Don and Mimi, and how raising a boisterous Catholic family of 10 sons from the 1950s to the ’70s may have allowed mental illness to hide in plain sight. ... The second story in Hidden Valley Road details the thankless psychiatric research that has gone into defining schizophrenia and establishing treatments. ... Kolker is a compassionate storyteller who underscores how inadequate medical treatment and an overreliance on “tough love” and incarceration underpin so much of the trauma this family experienced.
adicionada por Lemeritus | editarBookPage, Jessica Wakeman (Apr 1, 2020)
 
Best-selling, award-winning journalist Kolker (Lost Girls, 2013) takes a bracing look at the history of the diagnosis and treatment of schizophrenia by exploring the staggering tragedies of the Galvin family. ... he weaves the larger history of schizophrenia research and how the family eventually came to the attention of scientists striving to find a cure. Kolker tackles this extraordinarily complex story so brilliantly and effectively that readers will be swept away. An exceptional, unforgettable, and significant work that must not be missed.
adicionada por Lemeritus | editarBooklist, Colleen Mondor (Feb 15, 2020)
 
Journalist Kolker (Lost Girls) delivers a powerful look at schizophrenia and the quest to understand it. He focuses on a much-studied case: that of Colorado couple Don and Mimi Galvin’s 12 children, born between 1945 and 1965, six of whom were diagnosed with the illness. ... This is a haunting and memorable look at the impact of mental illness on multiple generations.
adicionada por Lemeritus | editarPublishers Weekly (Feb 4, 2020)
 
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Prologue: A brother and sister walk out of their house together, through the patio door that opens out from the family kitchen and into their backyard.
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For a family, schizophrenia is, primarily, a felt experience, as if the foundation of the family is permanently tilted in the direction of the sick family member.
But one thing seemed true: If they admitted Donald to anything resembling a mental hospital, the only certainties were shame and disgrace, and the end of Donald’s college education, and the tainting of Don’s career, and a stain on the family’s position in the community, and finally the end of the chance for their other eleven children to have respectable, normal lives.
...schizophrenia itself remained ragingly mysterious, and the drugs themselves could be physically damaging? The drugs made some patients obese, others stiff and ungainly, others practically catatonic—this from drugs that had been hailed as miracles. For the chronically mentally ill, success had been defined down to a point where it was starting to look a lot like failure. The only real, unambiguous beneficiary of drugs, of course, were pharmaceutical companies—all of which were still developing variations of the same original drug, Thorazine, that had been developed back in the 1950s. Then again, their very efficacy had seemed to stifle innovation. Why was it that every new drug brought to market had been either a version of neuroleptics like Thorazine or atypical neuroleptics like clozapine—with no disrupting third class of drug to spur forward progress?
“One of the things that has characterized psychiatry research forever is the old saying of, ‘Looking for the lost keys where the light is.’ Everything has been, ‘Well, we have this tool. We have a hammer, so we’re going to look for nails.’ And we would find things, because this is the nature of phenomenology—you find things.” Whether they were promising leads or red herrings, no one knew for sure.
The schizophrenia researcher Rue L. Cromwell described this dilemma in the 1970s: “Like riding the merry-go-round, one chooses his horse. One can make believe his horse leads the rest. Then when a particular ride is finished, one must step off only to observe that the horse has really gone nowhere. Yet, it has been a thrilling experience. There may even be the yen to go again.”
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"Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shockingviolence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after the other, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institutes of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother, to the search for genetic markers for the disease, always amidst profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love and hope"--

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